Everyday Life With Motor Neurone Disease
Motor Neurone Disease AssociationAn unprecedented look at everyday life for people living with Motor Neurone Disease. Photographs were captured across multiple campaigns including nationwide TV and print to raise awareness for the Motor Neurone Disease Association charity.
The projects involved photographing people diagnosed with the disease inside busy NHS healthcare environments, their homes and their places of work.
Due to the fast progressing nature of the disease, many people living with MND face incredibly difficult decisions about their work and home life. Rob carries on with his work as a teacher at a primary school.
Debbie and her daughter in their local park. Debbie has a wicked sense of humour, keeping the lip-gloss topped up during the day was crucial!
Rob now has limited mobility in one of his arms so alongside the school run, his son helps him to get dressed ready for work in the morning.
The Unlock The Door campaign focussed on pressuring central government into implementing much needed fast-track routes for adaptive housing for people living with MND.
A shoot with Zoe captured the new difficulties in her entire morning routine, from getting out of bed to taking a walk in the garden.
Taking photographs of people living with MND was a technical challenge. Often, maximising the use of a single lighting setup allowed for quickly adapting to new rooms of the house, so as to minimise the impact to their daily routines.
Martin sits with breathing equipment. A space that was once his living room has now become his bedroom as he can no longer use the stairs.
Although now facing incomprehensible life changes since diagnosis, Mike beams after typing a message on his eye-gaze computer.